We want to improve the quality of treatment for inflammatory rheumatic diseases with sound data. This is why we have launched a national patient registry, which we operate in close cooperation with the Swiss Society of Rheumatology SSR: For reliable quality management in practice. And for new advances in research.
The more you know, the better you can treat diseases. This is why the Swiss Clinical Quality Management Foundation (SCQM) operates a database that has established itself as a reference platform for inflammatory rheumatic diseases. With reliable data. And in collaboration with patients, doctors, and committed researchers. The great advantage for doctors: the scoreboard and the clearly structured table with automatically calculated scores that provide a thorough overview of the long-term course of the disease.
Transparent and clear: the scoreboard of the SCQM database
About 70 % of all Swiss rheumatologists enter their medical data in the SCQM registry - a significant achievement for our mission. The data collected in the registry includes standardised signs of progression as well as laboratory values, X-rays, results of ultrasound examinations and bio samples for the following clinical conditions:
However, not only medical professionals enter relevant data, but also patients, who record their medication and their personal perception of their disease progression in the registry by means of standardised questionnaires. This includes information concerning, for example, functional limitations, general quality of life as well as information on their socio-economic situation.
The data collected in the SCQM registry is available in encrypted form for observational studies and epidemiological research. Research using registry data is highly valued in the assessment of the efficacy and safety of therapies over a long period of time. The SCQM Foundation is an internationally recognised registry and promotes scientific cooperation with partners at home and abroad.
All publications with SCQM data can be found here.