Simple, clear, informative - mySCQM gives you access to your personal data. This gives you insight into the progression of your disease and all important disease-related information.
We want to support not only the medical profession and researchers, but also you as a patient. This is why we have developed mySCQM: A modern web application that you can use on your smartphone as well as on your computer.
Clear and easy to use: mySCQM on your smartphone
The advantages of mySCQM:
- You get insight into the progression of your disease.
- You can see your current medication at any time.
- You can record your current symptoms.
- With your participation you improve the quality of your treatment and bridge the gaps between consultations.
How to view your disease activity
In mySCQM you can see your disease activity in the form of a diagram under "Disease progression".
The chart visualises your disease based on different values - e.g. regarding your pain, functional limitations (such as difficulty in getting dressed or opening a bottle), or your need for painkillers. This allows you to track your personal disease activity at any time. We will be happy to explain to you in more detail what the individual values and abbreviations mean.
The data displayed depends on your diagnosis. If not all the values listed under your diagnosis are shown, this information has probably not been entered into the database (either by you or by your healthcare professional). The values from the questionnaires are very valuable for your doctor. It is therefore well worth your time to fill in the questionnaires.
Displayed values at:
Physician global assessments for disease activity
The "global disease activity" value shows how strong the healthcare professional estimates the activity of your rheumatoid arthritis at the time of the consultation: 0 means no disease activity, 10 means maximum disease activity. This value is entered by the healthcare professional during the consultation.
HAQ
The "Health Assessment Questionnaire" value records the severity of your limitations in everyday life (joint function, mobility, etc.): 0 means no limitation, 3 means maximum limitation of physical functioning. The HAQ is entered by you after each doctor's appointment.
NSAID
The NSAID (non-steroidal anti-inflammatory drug) value indicates how many anti-inflammatory painkillers you have taken in the past two weeks. The higher the value, the more painkillers you have taken in this period. A value of 0 means none and a value of 100 means a high dose of painkillers. You will be asked about the NSAID in the mySCQM short questionnaires you fill out between consultations.
RADAI-5
The RADAI-5 (Rheumatoid Arthritis Disease Activity Index) is a questionnaire that maps your disease activity. It mainly measures the pain and pressure sensitivity of your joints and the general activity of your disease. A value of 0 means no disease activity and a value of 10 means maximum disease activity. Answers to the questionnaire are entered by you via mySCQM between consultations.
GPAQ
The GPAQ (Global physical activity questionnaire) maps your activity level. There is no maximum value, but the World Health Organisation recommends a minimum value of 600.
The GPAQ information is entered by you via mySCQM in the regular consultation questionnaire.
BASFI
The "Bath Ankylosing Spondylitis Functional Index" is a questionnaire that asks about your disease-related disability in everyday life. The calculated value can be between 0 (no limitation) and 10 (very severe limitation). The BASFI information is entered by you via mySCQM in the regular consultation questionnaire.
ASAS-HI
The “ASAS Health Index” indicates the functional abilities and health of patients. Questions are asked about the categories pain, emotional well-being, sleep, sexual function, mobility, self-care, and community life. The calculated score can range from 0 (no limitation) to 17 (very severe limitation). The ASAS-HI information is entered by you via mySCQM in the regular consultation questionnaire.
BASDAI
The Bath Ankylosing Spondylitis Disease Activity Index is a disease activity questionnaire that measures back, joint and tendon pain, general fatigue, and morning stiffness. The calculated value can be between 0 (no activity) and 10 (maximum activity). The BASDAI information is entered by you via mySCQM in the regular consultation questionnaire.
GPAQ
The GPAQ (Global physical activity questionnaire) maps your activity level. There is no maximum value, but the World Health Organisation recommends a minimum value of 600.
The GPAQ information is entered by you via mySCQM in the regular consultation questionnaire.
HAQ
The "Health Assessment Questionnaire" value records the severity of your limitations in everyday life (joint function, mobility, etc.): 0 means no limitation, 3 means maximum limitation of physical functioning. The HAQ is entered by you after each doctor's appointment.
GPAQ
The GPAQ (Global physical activity questionnaire) maps your activity level. There is no maximum value, but the World Health Organisation recommends a minimum value of 600.
The GPAQ information is entered by you via mySCQM in the regular consultation questionnaire.
DLQI
The "Dermatology Life Quality Index" shows how much your skin disease affects your quality of life and is based on a dermatology questionnaire. A value of 0 means no impairment and a value of 30 means extreme impairment. The DLQI information is entered by you via mySCQM in the regular consultation questionnaire.
Physician global assessments for disease activity
The "global disease activity" shows how strong the medical professional estimates the activity of your giant cell arteritis at the time of the consultation: 0 means no disease activity, 10 means maximum disease activity. This value is entered by the healthcare professional during the consultation.
NSAID
The NSAID (non-steroidal anti-inflammatory drug) value indicates how many anti-inflammatory painkillers you have taken in the past two weeks. The higher the value, the more painkillers you have taken in this period. A value of 0 means none and a value of 100 means a high dose of painkillers. You will be asked about the NSAID in the mySCQM short questionnaires you fill out between consultations.
NSAID
The NSAID (non-steroidal anti-inflammatory drug) value indicates how many anti-inflammatory painkillers you have taken in the past two weeks. The higher the value, the more painkillers you have taken in this period. A value of 0 means none and a value of 100 means a high dose of painkillers. You will be asked about the NSAID in the mySCQM short questionnaires you fill out between consultations.
Physician global assessments for disease activity
The "global disease activity" shows how strong the medical professional estimates the activity of your disease at the time of the consultation: 0 means no disease activity, 10 means maximum disease activity. This value is entered by the healthcare professional during the consultation.
NSAID
The NSAID (non-steroidal anti-inflammatory drug) value indicates how many anti-inflammatory painkillers you have taken in the past two weeks. The higher the value, the more painkillers you have taken in this period. A value of 0 means none and a value of 100 means a high dose of painkillers. You will be asked about the NSAID in the mySCQM short questionnaires you fill out between consultations.
Registration questions
To begin using the registry, your medical professional or the SCQM office must log you in and register you with mySCQM.
The login takes place via SMS link, which you will receive after your registration. You can find more information in our infosheet (in German, in French, in Italian) . If you have any problems or questions, please contact us directly.
Go to my.scqm.ch. You will then receive an SMS with your personal code with which you can log in. If the code has expired, request a new one.
Ask your healthcare professional at your next consultation or contact the SCQM office to add the mobile phone number to your profile.
Data entry questions
A link to the questionnaire will be sent to you for each consultation with your treatment specialist. In addition, you can take part in the short surveys once a day. You can specify under "Settings" in mySCQM if and how often you would like to receive a reminder for the short surveys.
The short surveys bridge the gaps between medical appointments. In this way, mySCQM helps you and your healthcare professional to better assess the progression of your disease and optimise your therapy. The consultation questionnaires are more comprehensive and give you and your healthcare professional a more varied picture of your state of health.
Data entry for the short surveys takes about 3 minutes. Filling out the consultation questionnaire takes about 20 minutes.
Questions about data protection and costs
Your data is managed under strict application of the Swiss Data Protection Act and is protected using the highest possible standards - this applies to both mySCQM and the SCQM patient registry. For research purposes, the data is fully encrypted and provided without name and date of birth. This means that no conclusions can be drawn about the identities of the patients.
Yes, cooperation with science is a major focus of our activities. For research purposes, the data is completely encrypted and made available without name and date of birth. This means that no conclusions can be drawn about the identities of the patients.
The use of mySCQM and the database is provided by SCQM free of charge.
How do you log in to mySCQM?
Do you have questions about mySCQM? Get in touch with us.